Autism Spectrum Disorder

ADHD, Autism, and Neurodivergence Are Coming Into Focus

“As our understanding of ADHD, autism, and neurodivergence evolves, I share my insights on where we are and where the field should be headed.”

By Karen Saporito, Ph.D. Verified Updated on September 25, 2024
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Our study and understanding of neurodevelopmental disorders is rapidly changing. We’ve seen an explosion of awareness of ADHD and autism, and greater respect for all the ways in which human brains vary (hence the emergence of the term “neurodivergence”). Undeniably, it is an exciting time to be a part of the field.

At the same time, the medical community has its work cut out for it. We’ve barely begun to scratch the surface on ADHD and autism — conditions with strikingly similar traits and challenges that also happen to co-occur at significant rates. We primarily understand these conditions in white males, and we have a long way to go to ensure that women, people of color, and gender-diverse individuals are represented in research and published findings.

As our understanding of ADHD, autism, and neurodivergence evolves, I share my insights on where we are and where the field should be headed.

1. Most Providers Are Not Trained in ADHD or Autism

My first introduction to diagnosing and supporting ADHD and autism wasn’t until my pre-doctoral internship, after I had already spent four years in graduate school. A lot of what I have learned since then about ADHD and autism has been through clinical experience with patients and ongoing self-education.

Until 2013, the Diagnostic and Statistical Manual of Mental Disorders (DSM) did not even allow for co-diagnosis of both ADHD and autism. With the publication of DSM-5 that year came significant changes to the diagnostic criteria for both conditions.

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  • Autism spectrum disorder was once divided into several distinct disorders, including autistic disorder, Asperger’s disorder, and pervasive developmental disorder not otherwise specified (PDD-NOS). The DSM-5 consolidated these categories into a single diagnosis: autism spectrum disorder.
  • With the DSM-5, the age by which ADHD symptoms must be present to qualify for a diagnosis changed from age 7 to age 12. Additionally, the DSM-5 said adults need to show five symptoms of inattention and/or hyperactivity/impulsivity, compared to the six required by children for diagnosis. These and other changes have helped to capture more girls and women in the diagnostic process.

That ADHD and autism were kept separated for so long invariably affected clinical work and research, which we are still working to rectify. Neurodevelopmental conditions are not a standard part of medical training in the first place, and many medical providers, especially those who have not sought training in these conditions, remain unaware of how the diagnostic categories have evolved and how to diagnose and support these conditions.

2. The ADHD-Autism Overlap Is Significant — and Seriously Under-recognized

Autism and ADHD are highly comorbid and share a staggering number of traits and symptoms, many of which are not reflected in diagnostic criteria for either condition.

Autism and ADHD: Shared Symptoms, Traits, and Challenges

[Read: “A Living Contradiction” — the AuDHD Experience]

While distinct, multidimensional, and complex conditions, ADHD and autism overlap so much that I sometimes view them along the same spectrum. This does not mean that I think everyone who has ADHD is also autistic, or the inverse. It’s just that, when we look closely, we see that a vast number of people with ADHD frequently exhibit autistic traits, and vice versa.

As clinicians, we need to educate ourselves beyond the basic mechanics of diagnosis for either condition, seek experience and supervision when necessary, and include clinical judgment in our decision-making matrices. We cannot rely only on test or scores. We need to learn about behaviors and traits that we know clinically exist in both ADHD and autism but may not be currently reflected in diagnostic criteria.

3. ADHD and Autism Are Routinely Overlooked in Girls and Women

Boys are more likely than girls to be diagnosed with ADHD and autism. Girls and women, who often display more subtle, internalizing symptoms, tend to be overlooked because clinicians and researchers largely continue to view these conditions from a male-centric view. Female manifestations of either condition are often misdiagnosed, misinterpreted, and normalized. Gender and societal norms also mean that girls and women are more likely to overcompensate and mask their symptoms and challenges of ADHD and/or autism.

To understand female presentations and potential signs of neurodivergence (e.g., emotional dysregulation, low self-esteem, overwhelm, perfectionism, social anxiety) clinicians must take a different, nuanced approach when evaluating girls and women for ADHD and/or autism. It can be helpful to see patients across multiple sessions during the diagnostic process and ask about functioning in different settings.

4. How We Talk About Autism and Neurodiversity Matters Greatly

  • Be the paradigm shift. Changes are underway in how we collectively understand autism, ADHD, learning differences, and other neurodevelopmental conditions. We see this in the growing use of the term “neurodivergence” — language that aims to normalize and de-stigmatize, not pathologize, differences in thinking and functioning. While we must pay attention to medicalized and pathologized language, we must also retain the idea that neurodivergent individuals may need specific kinds of support, especially if their symptoms and traits interfere with functioning and cause distress.
  • Identity-first vs. person-first language. Individuals can label themselves however they want to. But many autistic individuals — viewing autism as a fundamental part of their identity that shapes all aspects of life — prefer identity-first language over person-first language. That is, most of the time, people want to be referred to as “autistic,” not as “having autism.” With ADHD, however, person-first language appears to dominate. Patients may feel more respected when they hear medical professionals use these terms.
  • The medical community must listen to patients. Understanding — not undermining — the lived experiences of those who live with ADHD and/or autism is critical. The experiences, traits, symptoms, and challenges of our patients do not always align with textbook definitions and available research findings, and firsthand accounts can offer a more accurate and comprehensive understanding of these conditions. Listening to patients helps us appreciate the nuances and variations in symptoms and offer personalized treatment plans. When patients feel heard and respected, they are more likely to engage in their care and advocate for themselves, leading to better outcomes.

5. Those Who Don’t Diagnose Still Play a Role

Licensed and trained medical and mental health providers who specialize in neurodevelopmental conditions can properly and comprehensively evaluate, diagnose, and treat ADHD and/or autism. It also bears repeating that those outside of healthcare— a patient’s family members, friends, teachers, and so on — absolutely cannot diagnose or treat these conditions.

And yet, non-specialists and those outside of healthcare still hold tremendous influence over a patient’s outcomes. Pediatricians and primary care providers, regardless of specialization in ADHD or autism, should be able to notice signs of these conditions, perform preliminary screenings, and refer patients to specialists. At the same time, family, friends, and teachers are often first to notice if someone is exhibiting signs that would warrant speaking to a medical professional. These individuals are often part of the clinical evaluation process.

While important people in a patients’ lives can serve as catalysts for diagnosis and support, they can also derail the process, especially when they are uninformed or misinformed about ADHD and autism. Family, friends, teachers, and even medical providers may miss the signs. Even worse, they can deny them, which can cause harm by derailing the path to evaluation and diagnosis on a child, adolescent, or adult’s health journey. Without a label or diagnosis, neurodivergent individuals are at greater risk of mental health issues, lack of appropriate and needed supports, and co-occurring issues like depression, anxiety, and self-harm.

My suggestion to all non-specialists and those outside of medicine: Don’t put individuals in a position where they begin to doubt themselves and their health providers. Instead, be curious. Educate yourself and ask how you can be supportive. Listen and be respectful of peoples’ experiences.

6. We Need to Pay Close Attention to Gender-Diverse Populations

Research is beginning to uncover what many clinicians and patients have observed: That gender diversity is present more frequently in autistic individuals and in those with ADHD.1 2 To be clear, research is limited in this area.

Nonetheless, his is an important connection because gender-diverse populations are already vulnerable to mental health issues — from depression and anxiety to self-harm and loneliness — due to stigma, discrimination, and social rejection. Living with ADHD or autism can compound these challenges.

The association between gender diversity and neurodivergence shines a light on the importance of inclusive, affirming care among ADHD and autism specialists. This includes asking patients for their pronouns, updating intake forms to include more gender options, self-monitoring for gender bias, and committing to ongoing education, among other approaches. Clinicians must also be careful about diagnostic overshadowing, whereby a patient’s emotional and behavioral issues are attributed to their experiences related to gender identity as opposed to other co-occurring conditions. As all of available studies on ADHD and autism are based on binary gender, researchers should include gender diverse options in studies and testing.

7. Social Media Can Open the Door to Understanding

There is a lot of misinformation on social media, and we should always view what’s online through a critical lens.

That being said, there is also lots of excellent, valid, and vital discussion online around the neurodivergent experience. On social media, individuals speak openly about their lived experiences with ADHD and/or autism — conversations that create transformative communities of understanding, friendship, support, and belonging while helping the undiagnosed begin to put a name to their experiences. (It’s my view that conversations in these spaces have and will continue to inform research on ADHD, autism, and neurodivergence.) From a health equity perspective, these online spaces offer support when access to evaluations, treatments, and health insurance is difficult.

As medical providers, we should refrain from making blanket statements about the “harms” of social media when it is a tool that has helped many. At the same time, patients should remember that people online are sharing their own unique experiences that may not apply to others. All-or-nothing statements about ADHD and autism should raise an eyebrow or two, as should anything that is offered as a “cure” for neurodivergence.

The ADHD-Autism Overlap: Next Steps

The content for this article was derived from the ADDitude ADHD Experts webinar titled, “AuDHD Guidance: Why Autism is So Difficult to Diagnose in Women and Girls with ADHD” [Video Replay & Podcast #511] with Karen Saporito, Ph.D., which was broadcast on June 27, 2024.

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1 Warrier, V., Greenberg, D. M., Weir, E., Buckingham, C., Smith, P., Lai, M. C., Allison, C., & Baron-Cohen, S. (2020). Elevated rates of autism, other neurodevelopmental and psychiatric diagnoses, and autistic traits in transgender and gender-diverse individuals. Nature communications, 11(1), 3959. https://doi.org/10.1038/s41467-020-17794-1

2 Kahn, N. F., Sequeira, G. M., Garrison, M. M., Orlich, F., Christakis, D. A., Aye, T., Conard, L. A. E., Dowshen, N., Kazak, A. E., Nahata, L., Nokoff, N. J., Voss, R. V., & Richardson, L. P. (2023). Co-occurring Autism Spectrum Disorder and Gender Dysphoria in Adolescents. Pediatrics, 152(2), e2023061363. https://doi.org/10.1542/peds.2023-061363